Caregiver Alliance of RI

The Caregiver Alliance of Rhode Island is a group committed to the caregiver needs of families and friends providing long term care at home for children and youth with special needs, adults with developmental disabilities, and elders. ‐ Priority Focus Area Respite

lifespan respite

The Caregiver Alliance of Rhode Island is a state coalition of the National Lifespan Respite Care Coalition focus on the National Lifespan Respite Care Act.

The Caregiver Alliance of Rhode Island holds ongoing meetings currently focus on working on the following areas:

  • Respite Delivery & Training
  • Policy Recommendations and Advocacy
  • Communications/Public Awareness Campaign
  • National Family Caregiver Month- November 2013

Lifespan Respite Care Resources

Find respite care resources for child and adults with disabilities, mental health challenges, and our elders who are aging with special needs.

Respite Care Resources

  • Respite Care for Children with Special Needs: The Department of Human Services, CEDARR program offers Respite for caregivers of children who meet an institutional level of care. To find out more about eligibility and how to access this program please click the link below. Visit now →
  • Respite Care for Individuals with Disabilities: The Rhode Island Division of Developmental Disabilities provides family support services which includes respite care. Visit now →
  • Respite Care Older Adults: Designed to offer short-term relief to a primary caregiver who is caring for an individual 60 years of age or older or persons of any age diagnosed with Alzheimer’s Disease or dementia. The Respite Services program provides a safe environment and help with tasks such as personal care and grooming; activities, recreation, and physical exercise; meals and snacks; health monitoring. Visit now →
  • NEW HOPE Care Exchange: The NEW HOPE Care Exchange provides volunteer respite care to caregivers with loved ones of all changes and disabilities. All Caregivers, individuals, and agencies in need can contact us to start the intake process. We will work together to get to your needs and preferences for matching to a volunteer that will work with you. We have experience working with children with special needs, adults with developmental or acquired disabilities, and seniors.Visit now →
  • Rhode Island Respite Care Provider Resource: Visit now →


Caregiver Support and Advocacy – Local

  • Parent Support Network of Rhode Island: The Parent Support Network is an organization of families supporting families with children, youth, and young adults who experience or are at risk for serious behavioral, emotional, and/or mental health challenges. PSN seeks to strengthen and preserve families and reduce family isolation by promoting positive mental health and well-being, and building a culturally and linguistically competent system of care, through advocacy, education, training, and increased public awareness. Visit now →
  • Rhode Island Parent Information Network: Mission is to assist individuals, parents, families and children to achieve their goals for health, educational, and socio-economic well being by providing information, education, training, support and advocacy for person/family centered care and systems change. Visit now →
  • Rhode Island Developmental Disabilities Council: Support people with developmental disabilities to fully participate in community life. Men, women and children should be able to enjoy family life. Children and adolescents should go to school. Adults should work. All should have decent homes, friends and live as independently as possible. Visit now →
  • Regional Points: Provides information, referrals, and help getting started with programs and services for seniors, adults with disabilities, and their caregivers. Visit now →
  • The Autism Project: The mission of the Autism Project is to empower families and professionals to educate and support individuals with Autism, Pervasive Development Disorder-Not Otherwise Specified, Asperger Syndrome and related disorders. Visit now →
  • Paul V. Sherlock Center on Disabilities: The Paul V. Sherlock Center on Disabilities, founded at Rhode Island College in 1993, is a University Center on Excellence in Developmental Disabilities Education, Research, & Service. Areas of Emphasis include Early Intervention & Education; Transition, Employment, and Adult Life; Leadership Development; and Higher Education. Visit now →


Caregiver Support and Advocacy – National

  • National Family Caregiver Alliance: Founded in 1977, Family Caregiver Alliance was the first community-based nonprofit organization in the country to address the needs of families and friends providing long-term care at home. Long recognized as a pioneer in health services, FCA now offers programs at national, state and local levels to support and sustain caregivers. Visit now →
  • ARCH: The ARCH National Respite Network includes the National Respite Locator, a service to help caregivers and professionals locate respite services in their community, the National Respite Coalition, a service that advocates for preserving and promoting respite in policy and programs at the national, state, and local levels, and the Center for Lifespan Respite T/TA which is funded by the Administration on Aging (AoA) in the US Department of Health and Human Services. Visit now →